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Sharing the genetic data help us all
David Haussler from the University of California Santa Cruz, known for his work leading the team who made the first human genome sequencing 15 years ago, has asked patients to share their genetic data in order to upgrade personalized medicine.
When the human genome was sequenced for the first time, the genetic analysis was made public and freely accessible to anyone. Haussler says that sharing this genetic data was a game-changer and made a number of advances possible. “The era of precision medicine is upon us.” He added that these genetic analysis are enabling to match patient’s tumor sequences to others to determine the best treatment to follow.
Considering the daily fight against cancer, "the power of this data network will be only as strong as it is vast," Haussler adds. "The bigger the pool of samples, the greater the likelihood of finding molecular matches that benefit patients, as well as patterns that shed new light on how normal cells become malignant."
Haussler said that patients can ask their doctors to share their genetic data in a safe mode with the Global Alliance for Genomics and Health, which pursue to enable better sharing of genomic data and establish technical standards for this data.